July 27, 2005
July 27, 2005 | Updates
Thanks everyone for helping us out and supporting us so very much. I am feeling today that I really miss my little boy. He is so vibrant and talkative and it’s hard to see his little picture and not miss his cute little smile. But I am holding in there.He is doing about the same today as yesterday. But we are getting a better control over the medications they are giving him and it is keeping him more comfortable more of the time. We are trying hard to work his little joints when he is asleep and keep them from tightening up as they are often in the same position when he postures time and time again. We are also trying to rock him or hold him and at least keep him in different positions than flat on his back in bed.
The doctors continue to assure us that this will most likely be a phase and that it usually peaks within 1-3 months and subsides slowly from there. However, they hope to have it much more controled over the next week or two with several medications that help to control this muscle spasming.
As far as his recovery goes, he could recover to any point from being how he is now to being totally normal. There is just no way to know. But I know from the priesthood blessings that he has received that he will be very much better than he is now. I believe that cognitively, he is still very much intact. And I believe that these issues with his body may even be able to be overcome. But I believe that will only come through faith, prayers & fasting. That is why I am so thankful for all of you and ask you not to give up in your prayers for him as I think this is going to be a long recovery for him. But I know he will overcome it more than anyone would even believe right now. His Savior loves him and he has been blessed to be able to play again and to be whole and well. I think we will see that miracle come to pass.
We have neighbors and our business employees putting up a fence around our home and my sister holding a garage sale and raising donations to help with the medical bills. Our employees are also holding an auction at our business next week to help with this fund. We are so very grateful to you all. There are so many to thank that I wouldn’t even know where to begin.
Keep praying for him and have faith that he will get better. I KNOW HE WILL and we will look back on this as a growing experience in our lives!!!
We love you,
Teresa
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