September 16, 2005
September 16, 2005 | Updates
Today was a pretty good day. The night was hard because Samuel didn’t sleep well. That was mostly my fault though. I let him take a late nap yesterday and sleep too long during it and I paid for it last night. So I kept him up a lot more today. Hopefully, that will help.We met Samuel’s physical therapist today and he should visit at least once a week. We’ve also met his occupational therapist who should visit weekly also. And his speech therapist should come Monday. I haven’t heard from the Early Development program yet, so I need to call them again. That will hopefully give us a therapist nearly once a day.We spent most the day just getting used to the schedule again. We had a few difficulties. Samuel has been hard to catheter nearly every time he has needed it. I know I’m doing it right, he just won’t relax long enough to have it done. I keep thinking we’re going to end up at the ER in the middle of the night just so they can empty his bladder. I hope not. He also pulled his NG tube half way out today. I noticed that the end of the tube sure looked longer than it used to be. So I checked and sure enough it was out. I had to replace it and that was easy. But checking the placement wasn’t. The poor kid had to deal with me placing it three different times because I couldn’t ensure it was in his stomach until the last time. And I definitely didn’t want to be putting feeds into his lungs.
Otherwise, we got to spend some time outside and he watched his dad mow the lawn. It was perfect weather and he relaxed laying on the trampoline with me for a while. He also seemed to be interested in looking at the horses through the fence. We even got to spend time playing with a new toy and I think he enjoyed the lights it made.
I forgot to tell everyone that I saw Samuel smile the day we came home. I went and got the first car seat we tried and brought it up to the hospital room. I set it on the floor and took Samuel out of bed and strapped him into the seat. He was pretty relaxed and let me do it all up. Then I stepped back to look at it all and looked right into his eyes and he smiled. And then he laughed a tiny little laugh. And then he smiled again and again and again. It was like he knew we were going somewhere. It was the first wakeful smile in 6 weeks. It was wonderful.
Well, that’s all for tonight. Thanks again to everyone. My kids were carted to and from school today and to and from soccer and a school carnival and dinner was brought to our home. I wouldn’t know what I’d do without everyone being so willing to help. Thank you, thank you, thank you! And keep praying!!! I expect the Lord to keep the promises he’s given us in Samuels blessings. But we need to have faith and keep asking.
Love,
Teresa, Tom, Samuel & Boys
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