August 8, 2006
August 8, 2006 | Updates
Sorry for the late post. We went down to Primary’s for a pump refill this past Friday and we reduced Samuel’s doseage once again by 75 micrograms a day. He is now at 850 a day. The nurse really questioned me before coming down that much. (She’s new.) She said they don’t normally do that much at a time. But I told her that’s what we’d done last time and that when we were going up we were going up 100 a day. So she finally did it. And we have seen no bad side effects from it.We also saw one of our rehab doctors who we hadn’t seen since probably last December. She walked up to Samuel and said “hi” and he smiled at her. She was pretty taken back by that. Then she checked the range in his legs. (Something within any rehab doctor draws them to do that!) And she was really impressed. She commented on how strange it was that he could be so bad right after the accident and improve so much afterwards. (Of course, it’s not strange when God’s on your side and you have so many prayers being sent up for you.) When she finished, she turned around and saw Nathan and said with a perplexed look, “Who’s that?” I said, “Oh, yea, well, uh, he just showed up!” The look on her face was priceless - like she just couldn’t figure out how we had done all that in the few months since she saw us last. I had to chuckle! I think we’ve surprised her on more than one occasion and I’m sure we’ll continue to keep her guessing!Samuel is wigglier than ever today. His physical therapist said he had his best day yet. Samuel was pushing himself from a sit to a stand and it wasn’t posturing. It was purposeful movement of his leg and butt muscles. The therapist said he really didn’t think Samuel had control of those muscles until the last few weeks and now he’s totally amazed at what Samuel is doing. We are also seeing more control of his hands. For the first time today, he held toys in his hands all on his own and would move them around like he was playing with them. He even grabbed one that was on the floor on his own. It was probably just happenstance, but it’s just an improvement for him to be able to grasp onto things.
Samuel is making tons of sounds. We just don’t know what they each mean :). But he is so fun to play with. He loves to be tickled or thrown or swung around. He loves to see people dance and especially to be held while they dance. His smile is contagious and he shares it frequently. We love it.
Samuel is still trying to figure out how to move around on the floor. I sure wish he would find a consistent way to do so. I think it would really relieve his frustration (and probably increase mine). We are also trying to find a more comfortable walker for him because he seems so intent on standing and walking when we hold him upright. He really seems to enjoy it. (Sitting is a whole different ballgame.) Samuel hates to sit in just about anything. It’s going to be quite the challenge to get him to sit during school. Hopefully, we’ll figure something out.
This week was busy. Therapy is back in swing, we blessed Nathan this weekend and we went through the temple with my grandma to have my grandpa sealed to her. It all was very nice. I’ve posted a few pictures of Nathan and the family. I took some of Samuel, but they turned out pretty blurry so I didn’t post them (bummer).
Well, that’s about it for this week. Poor Samuel is sporting a nylon swim cap everyday now courtesy of his mother in a serious attempt to get the hair to grow back on his bald spot on the back of his head. So if you see us around, you’ll know I haven’t lost my mind. I just love that curly, red hair!
Keep praying. It will all come in time. I can see it bit by bit everyday!
Love,
The Jewkes
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