Quick Update…
August 12, 2008 | Updates
I don’t have a lot of time to post tonight. There is just SO MUCH going on. But I wanted to thank you all for all of your well wishes and emails of your concern for Samuel. Yesterday, we spent the day at Primary Children’s hoping to figure out what was bothering Samuel. They refilled his baclofen pump and raised the dose a bit (just 10 micrograms per day). Then they x-rayed the catheter going from the pump to his spine to see if they could see a kink or a split in it. They couldn’t see anything wrong. (I tell you though, seeing x-rays of that huge thing inside Samuel’s tiny body makes me sad. It just looks so very overwhelming inside him.) The radiologist did note that there appeared to be a moderate amount of stool in his intestines as seen in the x-ray, so we brought him home and gave him an enema. (I know…too much information.)
Anyway, that didn’t seem to do much, but this morning, he was retaining urine again, so I gave him a suppository to get him to have a bowel movement because that usually causes him to urinate also and it’s a much easier fix than putting him to sleep at cathing him. He then had 2 really messy diapers throughout the day and tonight, he seemed much better. So, I’m guessing it was constipation afterall. Seems weird since I give him a suppository daily, but I’ll be watching him more closely on that front for awhile until I’m certain we have it under control again. It could’ve been the small increase in his baclofen, but I sort of doubt it.
So, things are looking better. Let’s hope tomorrow brings another good day and then we’ll know we’re on the right path. I have so much to write about and so many new pictures. Since mid-July, we’ve been to Joe’s Valley, Bear Lake, Boise, summer school ended, my sister’s wedding reception, Tanner’s Eagle award ceremony, started school registrations and cranial sacral therapy. It’s been crazy. And today, I think I pulled the head of a tick out of the heel of my foot :O. I’m a little worried about that seeing as how that foot has been bothering me for 6 months now. Hopefully, I’m wrong and it’s just some poppy seed sized rock or something. Weird, though!
So, that’s the short of it. I’ll leave you with my favorite picture taken at Joe’s Valley of Samuel enjoying the nice weather in the beautiful greenery. I didn’t take the picture. A family member who does professtional photography did. You can see her stuff at www.staynerphotography.com. Enjoy! And thanks for the prayers!
Love,
Teresa
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