The longest 11 days…
October 7, 2008 | Updates
Well, it’s been 11 days since my last post. It took about 1 week for the Keppra to finally kick in 100%. Samuel was a little more irritable and had a few less seizures each day. About last Wednesday, he woke up with no seizures and completely upset. So, the Keppra did it’s job, but the nasty side effect of irritability is definitely here. We called the doctor on Thursday and he suggested dropping Samuel’s dose to 3 mL’s twice a day instead of 4 mL’s twice a day and adding 50 mg of vitamin B6. Then he suggested we wait a week and see if things got better.
Can I just say I haven’t had a week feel this long in a long time?!!! Samuel has been mad unless he’s been asleep. Period. And last night, he didn’t even sleep much. He and I were together until about 2 am. Ugh. Anyway, I’ve got a new message into the neurologist and am hoping he calls me early tomorrow. We need to try something else. We have 2 more days before the week is up, but I don’t think I can hold out and watch Samuel struggle through 2 whole additional days. So, we’ll have to see what the neurologist has to say.
Please pray that Samuel can make it through the next week or so without too much struggle. He is just miserable and it’s going to take some time for the new med to work. It’s hard to believe we’ve already been battling this seizure mess for 17 straight days now. I’m sure Samuel is so tired of feeling awful.
Thanks everyone.
Love,
The Jewkes
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October 7th, 2008 at 8:40 pm, Caradie & Corbin Says:
I think of you guys often, I check every day to see if you posted (as I never check the e-mail the alerts go to), I’m so sorry Samuel is having to go through this. But I’m even more sorry you have to. I know I kinda feel sorry for my own self right now too with Corbie’s surgery issues. I just have such a hard time seeing him in pain. But I can’t even imagine seizures. The one on dropshots was very hard to watch. Poor little guy.
Sometimes it just doesn’t feel like we ever do the right thing & medications are always the hardest to get right. UGH!!!
Caradie & Corbin